Standards for Health Information Technology to Ensure Adolescent Privacy

Joint statement from the American Academy of Pediatrics Committee on Adolescence and Council on Clinical Information Technology regarding how electronic health records should support the special privacy needs of adolescent patients. Acknowledges the basic conflict between parent as the financially responsible party and the adolescent who may want certain kinds of care to be kept private from the parent. Proposes the creation of standards that could support more sophisticated modes of information transmission and display.

Blythe 2012 (Pediatrics) | PubMed 23109684 | Author Search

Preserving Patient Privacy and Confidentiality in the Era of Personal Health Records

Opinion piece that maintains that electronic health record patient portals be “designed to manage sensitive information, … able to differentiate between who is logging in and flex the data available to be viewed on the basis of the individual’s access type.” Avoids discussion of who decides what should be considered private and how the work of marking data sensitivity should be performed.

Bourgeois (Pediatrics) | PubMed 25869372 | Author Search

New Challenges for Electronic Health Records: Confidentiality and Access to Sensitive Health Information About Parents and Adolescents

An opinion piece on what is necessary in EHR systems to protect both the rights of the adolescent (to avoid unwelcome disclosure of sensitive health information) and the rights of the parents (to avoid unwelcome information about them to their child). While EHRs can be set up to segregate data in various ways, such segregation entails tremendous discipline on the part of clinical users to maintain this segregation and applicable laws to protect the clinician when access (by either the adolescent or the parent) is denied.

Bayer 2014 (JAMA) | PubMed 25562260 | Author Search