Opinion piece that maintains that electronic health record patient portals be “designed to manage sensitive information, … able to differentiate between who is logging in and flex the data available to be viewed on the basis of the individual’s access type.” Avoids discussion of who decides what should be considered private and how the work of marking data sensitivity should be performed.Bourgeois (Pediatrics) | PubMed 25869372 | Author Search
aKaiser Permanente survey of parents of children with chronic disease on PHR use, concluding that they do use such systems. In the post-implementation survey, 2/3 of respondents said they had used the PHR in the prior year, and half of those said they had used it at least 6 times in that period.Tom 2012 (Pediatrics) | PubMed 22689872 | Author Search
McElligott JT, Darden PM
Pediatrics 2010 Mar;125(3):e467-72
OBJECTIVE: The goal was to determine whether patient-held vaccination records improve vaccination rates.
METHODS: The public-use files of the 2004-2006 National Immunization Survey, a national, validated survey of households with children 19 to 35 months of age, were used. The main outcome was up-to-date (UTD) vaccination status (4 diphtheria-tetanus-acellular pertussis/diphtheria-tetanus vaccine, 3 poliovirus vaccine, 1 measles vaccine, 3 Haemophilus influenza type B vaccine, and 3 hepatitis B vaccine doses), and the main predictor was the use of a vaccination record. [Read more…]
Byczkowski TL, Munafo JK, Britto MT
Health Informatics J 2014 Jun;20(2):151-62
The objective of this study was to understand perceptions of the usability and value of web-based patient portals among parents of children with a chronic condition (diabetes, juvenile idiopathic arthritis, and cystic fibrosis). [Read more…]
Tom JO, Chen C, Zhou YY
J. Pediatr. 2014 Jan;164(1):112-7
OBJECTIVE: To determine the association of parental use of integrated personal health records (PHRs) with children’s adherence to immunization and well-child care (WCC) visit recommendations.
STUDY DESIGN: For the immunization and WCC visit measures, we retrospectively analyzed, respectively, 766 and 639 matched pairs at Kaiser Permanente (KP) Hawaii and 2795 and 2448 pairs at KP Northwest who were ≤ 31 days old at enrollment and continuously enrolled for 2 years between January 2007 and July 2011. [Read more…]